Participant Resources

AWARE Specific:

  • ClinicalTrials.gov Identifier: NCT05916339: ClinicalTrials.gov is a public database that provides information on current, past and future clinical research trials. You can find additional information on the AWARE research study using this identifier.

  • PCORI - AWARE: The Patient-Centered Outcomes Research Institute® (PCORI®) is an independent, nonprofit organization authorized by federal law. Its mission is to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work. This research was funded through a Patient-Centered Outcomes Research Institute® (PCORI®) Award (PCS-2021C2-23560).

Autism & ADHD Specific Resources:

  • Autism Care Network (ACNet): The Autism Care Network (ACNet) is a collaborative network of health centers, including clinical care and research facilities, that connects patients, families, healthcare teams, and researchers. ACNet is dedicated to enhancing care for children and youth with autism spectrum disorder.

  • Autism Speaks: Offers resources, advocacy, and support for families, including a comprehensive guide titled "A Parent's Guide to Autism”.

  • DC Autism Parents: DC Autism parents is a nonprofit organization that connects families to much-needed resources to support early autism diagnosis and navigation throughout the lifespan, and connects families to a larger autism community.

  • CHADD: Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) is a nonprofit dedicated to empowering individuals affected by ADHD through resources, support and advocacy.

Research Resources:

  • Organization for Autism Research (OAR) navigating Research

  • CYSHCNet: The Children and Youth with Special Health Care Needs National Research Network (CYSHCNet), provides resources for participating in research as a lived experience research partner. - A glossary of reach terms can be found here.

  • FYREworks Partnership-Based Research Training: Family and Youth Research Education (FYREworks) is a partnership-Based Research training developed through a PCORI grant in conjunction with youth, parents, researchers and educators to create a more broadly accessible training to allow individuals to participate in research.